A GoFundMe for a boy with Sanfilippo Syndrome was one of this year's most successful.
At age 6, Carter was diagnosed with the brain condition, his mom, Jen Sarkar, wrote on the fundraiser's page. Sarkar wrote that the condition is often referred to as "Childhood Alzheimer's" because the progressive disease is caused by a lack of an enzyme needed to break down molecules. Children born with the disease typically live between ten and 20 years.
"My son is dying. There's no other way to say it," she wrote. "My beautiful, perfect little boy ... is dying. As I lay him down to sleep each night, my tears overflow, and a deep aching is in my heart at the reality of losing my child."
On the GoFundMe, Sarkar said that her son "will lose the ability to talk, swallow, walk, he will develop seizures, will suffer severe dementia, and die."
"But for now, he can still talk, some," she said. "He can still run and play with his big sister Sophia. For now, he's hanging on, but just barely." Sarkar wrote that she started the campaign with the intention of raising $1 million to fund a clinical trial via the non-profit Cure Sanfilippo Foundation.
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Source : https://www.thisisinsider.com/most-successful-gofundme-campaigns-2018-12227